What Does It Feel Like to Have Bipolar Disorder?

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March 28 2014 8:12 AM

What Does It Feel Like to Have Bipolar Disorder?

This question originally appeared on Quora.

Answer by Mills Baker, in fairly successful treatment for 12-plus years:

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I have bipolar disorder, as does my mother and as did her mother. I am the sort of person who "seems" bipolar to people—that is my energy, creativity, instability, mercuriality, and easy gregariousness confirm many of the popularly imagined stereotypes about bipolar people.

That said, I think only in their extremes are mania and depression actually unintelligible to ordinary folks. That is: At their utmost intensity, they are unlike anything a normal person ever experiences (mania is, in particular, qualitatively different at the end than any healthy mood state), but at most times, they are not at all different from the maximally intense moods everyone knows—just more so, longer-lasting, and disconnected from normative causes.

To understand what having bipolar disorder "feels like," keep in mind the following:

First, bipolar is less about short-term mood instability than about long-term mood cycles, which can last months, years, or in rare cases even decades. (See F.M. Mondimore for more on cycles and durations.) Instability is part of it, but not the only part.

Second, the cumulative effect of these cycles on the formation of a personality is significant. After a childhood of radically changing interests and attitudes on such a timeline, one develops a certain excitability, flightiness, distractibility, or perhaps that's just me. But this is a major part of bipolar: the personality that is shaped by a lifetime of intense, fluctuating moods.

Third, cycles grow in intensity over time. This means that at first in mania, for example, you're simply in a great mood. Then you're really in an extraordinarily creative, kinetic, charming mood. Then you're the life of all parties, and you're feeling pretty libidinous. Then you're doing irresponsible things and fleeing a pursuing psychosis. Then you're in psychosis, tortured by acousticovisual hallucinations, paranoia, and your own penchant for completely unacceptable reactions and behavior. This progression can take days, weeks, months, or years. The same progression tends to hold for depression.

Kay Redfield Jamison is a psychiatrist at Johns Hopkins University who suffers from, treats, and writes about bipolar disorder. About mania, she writes:

The ideas and feelings are fast and frequent like shooting stars, and you follow them until you find better and brighter ones. Shyness goes, the right words and gestures are suddenly there, the power to captivate others a felt certainty. There are interests found in uninteresting people. Sensuality is pervasive and the desire to seduce and be seduced irresistible. Feelings of ease, intensity, power, well-being, financial omnipotence, and euphoria pervade one's marrow. But, somewhere, this changes. The fast ideas are far too fast, and there are far too many; overwhelming confusion replaces clarity. Memory goes. Humor and absorption on friends' faces are replaced by fear and concern. Everything previously moving with the grain is now against-- you are irritable, angry, frightened, uncontrollable, and enmeshed totally in the blackest caves of the mind. You never knew those caves were there. It will never end, for madness carves its own reality.

Mania (and hypomania, to an obviously lesser extent) are truly hard to describe; I attempted my own description of a brief manic experience here.

In the blackness of myself, I could see that my thoughts were not myself at all: My self is only a nothingness that exists in a state of pure terror and hatred, and my thoughts rotate around it as debris in a tornado. My thoughts were imbecilic, disgusting, vicious, superficial, detestable, but by this point I could no longer stay with them long enough to hate them. They distracted me, but I couldn't attend to them. I said in my mind: Oh God, oh God, oh God, nothing, nothing, nothing. Oh God, nothing, nothing. Oh God, I'm nothing, it's nothing, there's nothing, God, God.

Periodically I would see what I assume was a phosphene, and it would transform into something real. I saw a glowing purple shape become the sun, and the sun became the blond hair I had in childhood. And I realized that I had murdered that boy, had murdered my own boyhood self, had destroyed this innocent child, and I ground my teeth to silence myself, as I wanted to scream so loud that I would tear myself apart, would explode in a bloody spray. I was sick with guilt and fear. I had nothing inside myself any longer. I felt I had betrayed myself, had orphaned myself when I needed someone most. I heard in my mind: Why did I kill him? Oh God, he needed someone, he needed someone, why did I kill him? I've killed him, oh God, I've killed him.

I was seized with a desire to gain physical access to and destroy my brain, an urge I felt in childhood when I had severe headaches. I grasped my hair and attempted to pull it out; I wanted to rip my scalp over and reach into my skull and destroy my mind, scramble and tear apart this malevolent and pathetic apparatus with my fingers, rip out the guts of my who nightmare self. I couldn't get my hair out, hated myself for it, lost the thread of this thought, and resumed my silent shrieking and sobbing.

About depression, Jamison writes in Night Falls Fast:

In its severe forms, depression paralyzes all of the otherwise vital forces that make us human, leaving instead a bleak, despairing, desperate, and deadened state… Life is bloodless, pulseless, and yet present enough to allow a suffocating horror and pain. All bearings are lost; all things are dark and drained of feeling. The slippage into futility is first gradual, then utter. Thought, which is as pervasively affected by depression as mood, is morbid, confused, and stuporous. It is also vacillating, ruminative, indecisive, and self-castigating. The body is bone-weary; there is no will; nothing is that is not an effort, and nothing at all seems worth it. Sleep is fragmented, elusive, or all-consuming. Like an unstable gas, an irritable exhaustion seeps into every crevice of thought and action.

Jamison is well-known, too, for her research on the link between bipolar disorder and creativity, which leads me to my conclusion:

To know what it "feels like" is to know the qualia, the phenomenological experiences a bipolar person encounters that an unaffected person does not. I don't think there are many of these. Going berserk, being creative, having an awful temper, not being able to trust my own emotional reactions: These have a certain weight when I list them out, discuss them as individual tragedies. They can even sound unique.

But everyone loses it. Everyone has his moments of charisma, creativity, success, strength, achievement, and everyone struggles with himself. You may not hallucinate, but I bet you can understand what it's like for your mind to misbehave, react insanely. If you haven't yet lost control of yourself in life, wait.

We bipolar people have a tendency to comfort ourselves by saying that our more intense experience of typical phenomena constitutes an election: We are elite, more alive, deeper! Jamison's own excellent research on bipolar artists has amplified this: The popular Western conflation of insanity, artistic talent, and melodrama permits a kind of sentimental self-regard: Yes, I'm crazy, but I'm also probably in some difficult-to-establish way deeply brilliant!

Perhaps this is true for some, but it seems mostly to me to be a consolatory story, the sort of inversion that Nietzsche describes as resentiment: To say this illness is really a kind of health, a kind of deeper seeing, is a lie. I like my life a lot, but I am uncomfortable with this persistent meme, largely because I'm sometimes confused into believing it myself. Indeed, one of bipolar disorder's chief symptoms is often that a patient confuses herself with an artist. (Or more generally: an exception. Mondimore notes that throughout history, "grandiosity" has changed in its expressions. An important symptom of bipolar, grandiosity was once expressed by women saying they were pregnant with kings or the messiah, men believing they were kings or the messiah; presently, our insanity is less monarchical and religious; we all instead believe we special exceptions of one sort or another).

I've been in treatment now for 12 years, on the same cocktail of medications for years and years. For me, the most enduring way that bipolar "feels" different is in how I cannot trust my reactions. When someone says something to you and you recognize it as an insult, as abuse, your reactive anger is appropriate and you can commit to it, or you can make some determination based on your values, your reason, and choose a different course of action. I can't even trust that the person insulted me. I can't trust my emotional perceptions or reactions.

That's the strangest thing about how it feels, after the dust of the actual disorder settles, more than a decade in: the open insanity has abated and visits only briefly, the idea that I'm a secret artist is absurd, and what's left is a more or less normal life in which I have to emphasize "mental hygiene" (prioritizing regular sleep, for example) and in which I always feel doubt about what I think and feel, as we all probably should anyway.

(As Anne Zieger helpfully noted, this answer is not fully comprehensive: Phenomena such as rapid-cycling, which I've experienced only from SSRIs, aren't discussed, and the variations of bipolar disorder aren't either. How it "feels" to be bipolar naturally varies widely from person to person, just as how it feels to be sane must, so I should emphasize that this answer is how it feels for me alone. Most bipolar people will have significant variations in their experiences.)

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