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How sad that Summer Stiers,
the young woman suffering from an as-yet uncategorized illness who was
profiled so heart-breakingly by Robin Marantz Henig in the New York Times Magazine,
has died. At least she ended up at the National Institutes of Health
where the doctors tried—unsuccessfully—to puzzle out the reason for her
many medical maladies.
One of my daughter's favorite shows is Mystery Diagnosis, which presents the story of someone with strange symptoms who goes for years without being able to get a diagnosis ... (Read more at DoubleX.com.)
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A guest post from Robin Marantz Henig, a contributor for the New York Times Magazine (and Sam's mom!):
The death two weeks ago of Summer Stiers, a young woman I met last year and wrote about at length for the New York Times Magazine,
made me think about how hard it was for her to get anyone to take her
perplexing illness seriously. Whatever ailed Summer seemed to cause a
wide range of symptoms, which is why nobody could quite figure out what
was wrong with her. She bled from her intestines; her kidneys failed;
she had chronic pain in her legs and back; she developed severe toxemia
while pregnant and lost her baby; her bones were damaged; she had
frequent mental blackouts attributed to seizures; she had lost one eye,
and the retina in the other was damaged; she was profoundly fatigued;
her hair was completely gray, even though she was only 31 ... (Read more at DoubleX.com.)
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